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Thursday, December 2, 2010

Hugs for Haleigh


Haleigh Little, an 8-year-old granddaughter to a fellow REALTOR, Libby Jordan of Coldwell Banker Platinum Partners is fighting a rare disease called Argininosuccinate Lyase Deficiency (ASL). Haleigh was diagnosed with this rare disease at birth, of which there are only about 100 known cases in the United States.

ASL is an inherited, congenital metabolic disease caused by a defect in the urea cycle. Even with medications, Haleigh’s ammonia levels can reach life threatening levels requiring her to spend days in the hospital and sometimes causes seizures. Haleigh has had to be air lifted to Miami whenever her ammonia levels had to get too high to have the medication administered intravenously.

Haleigh was recently on the liver transplant list; and just in the past month a match was found for little Haleigh! The news is fantastic! Haleigh’s transplant occurred in Miami, FL where Haleigh has been admitted to the hospital, and visits frequently. The family has had to locate affordable housing to stay close to the hospital for her visits and any emergencies.
The family of Haleigh has had some major financial obstacles to overcome. Her medications, after her insurance has paid, is around $1200 per month, not counting theexpenses of the Miami housing. The family desperately needs help.
Coldwell Banker Platinum Partners has banded together to help Haleigh, Libby and their family, through a charity program they developed named, “Hugs for Haleigh”. In November, the REALTOR family held a 50/50 raffle; where half the proceeds were to go to Haleigh’s medical costs. The winner, drawn on November 24th was Dr Jim Vaughter, a local Savannah dentist. He DONATED all his winnings to Hugs for Haleigh!! That's something to SMILE about! All together, the raffle brought in about $1800 for the family.
The next event the Company plans to hold is a Caravan for Charity on December 9th. Agents from the Platinum Partners team will tour through various homes on a Real Estate Caravan. Builders have generously offered to contribute money to the cause based on the number of agents who attend. For each agent that attends, Builders donate a certain amount of money; a portion of the monies raised will also go to Toys for Tots.

The Company also hopes to hold a Boston Butt sale just in time for the Super Bowl.

For more information on this cause, or to donate to the Hugs for Haleigh please call 912.352.1222 or visit online at http://savannahgahomes.net/hugsforhaleigh.html. Thank you for your support.

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