Hugs for Haleigh

Help us help little Haleigh

Dear Friends,

A member of our REALTOR family greatly needs our help.

Haleigh Little, the 8 year old granddaughter of Libby Jordan, Coldwell Banker Platinum Partners is fighting a rare disease called Argininosuccinate Lyase Deficiency. Haleigh was diagnosed with this rare disease at birth of which there are only about 100 known cases in the United States.

Argininosuccinate lyase deficiency (ASL deficiency) is an inherited, congenital metabolic disease caused by a defect in the urea cycle In this cycle a chain of enzymes in the liver converts ammonia into urea. Ammonia is produced when the body breaks down protein, and in high concentrations causes damage to the nervous system.

Even with medication Haleigh’s ammonia levels can reach life threatening levels requiring her to spend days in the hospital and sometimes causes seizures. Haleigh has to be air lifted to Miami every time her ammonia levels get too high to have medication administered intravenously. Libby says "She has had more seizures than I can count".

UPDATE: HALEIGH HAS RECEIVED A DONOR LIVER AND THE TRANSPLANT IS COMPLETE.

From Libby...."We have had some issues with her enzymes being elevated. This is a sign of rejection. They have changed her medication which seems to be lowering the numbers. They have to find a balance in her meds to ward off her body rejecting the liver. She is still in some pain but seems to be more alert than yesterday".

The family has some major financial obstacles to overcome. Her medications, after her insurance has paid, will be around $1200.00 per month not counting the expenses of the Miami housing. They are working on trying to find someone who has a condo or house that they will be willing to rent short term with no luck so far.. Housing like Ronald McDonald House is not an option for her due to the fact that Haleigh cannot come in contract with any infections or viruses after the surgery, isolation. The only thing they have found is an efficiency for $100.00 per night, which is not an option.

Financially, this is major and they desperately need our help! This is a tough time for many of us financially but any amount you can possibly donate, no matter how small, will be greatly appreciated and help ease the burden from Haleigh and her family.

PLEASE DONATE WHATEVER YOU CAN TODAY!

http://savannahgahomes.net/hugsforhaleigh.html